We remained private until I lost that privilege when Sophia’s healthcare was under attack, which also meant her life was under attack. I was always her fiercest advocate. I got her everything she needed through insurance, even if the first answer was no. So, naturally, I was going to fight this. I decided after going back and forth for weeks that I had to share our story publicly. I gave TV interviews, traveled across the US to give speeches, spoke on panels, raised awareness online, and have been doing this work for three years now. So many people fell in love with Sophia and were impacted by her spirit just as we were. We gained support from across the world, but It didn’t take long before I began to get attacked online. People made cruel comments about her looks, told me to kill my child, and we’ve received threats of violence, but this time, I fought back and was strong enough to keep going.
Courtesy of Natalie Weaver
‘All done,’ she mustered out, with an approving ‘finally mom’ look. It was the hardest decision.’: Mom of 10-year-old bullied for facial deformities vows to fight back after her death, ‘Sophia was like no one in this world’
