“I never wanted to change Sophia for the world but instead wanted to change the world for Sophia. I just wished I could’ve accomplished that while she was here.
It’s been five months today since I was cuddled up with my 10-year-old daughter in her bed as she took her final breath. It is and always will be the darkest and most painful moment of my life. I didn’t think I’d be able to survive this pain, and some days still don’t, but I keep going for my husband, my other kids, and the people whose lives were impacted by Sweet Sophia and have yet to be. Sophia’s life not only had a profound effect on her family, but she also had a profound impact on people from around the world. Even though she is no longer physically here, her life and influence will live on in the work that I do to normalize profound disabilities and facial differences. I vow to keep her message of unconditional love and acceptance alive.
Courtesy of Natalie Weaver
