During Sophia’s final days, she was surrounded by unconditional love, support, and adoration. The same way she spent every day of her life. She had gotten sick, and we knew this moment was coming. Sophia was already in hospice care in our home. We had made the devastating realization four months earlier that her body was tired and had had enough, and her specialists agreed. She almost died after surgery several months earlier, which she needed due to internal damage from another surgery. It became too much for her body. She couldn’t speak words most of the time, but she could communicate with her expressive eyes and in various other ways. When I told her that she wouldn’t spend another day of her life in a hospital or experiencing another painful surgery, a smile and the dimples under her eyes emerged. She mustered up the ability to say and sign, ‘All Done,’ very loud and excitedly. She gave me an approving and ‘finally mom’ look. I knew we had made the right decision, the hardest decision of our lives.
Courtesy of Natalie Weaver
‘All done,’ she mustered out, with an approving ‘finally mom’ look. It was the hardest decision.’: Mom of 10-year-old bullied for facial deformities vows to fight back after her death, ‘Sophia was like no one in this world’
