I Watched My Son Laugh at a Waiter With Down Syndrome, but Instead of Making a Scene, I Waited Until We Got Home

“How did he die?” Leo said.

“Heart problems,” I said. “People with Down syndrome have a higher risk for certain heart conditions. He was thirty-two.”

Leo was quiet.

“What was his name again?” Leo said.

“Daniel,” I said. “Danny.”

He looked at the photograph from the movie theater.

“Did he know?” Leo said. “When people made fun of him?”

“Sometimes,” I said. “Not always. He was better at some social cues than others. When he didn’t know, I was grateful he didn’t know. When he did know, I watched him handle it in a way I could never fully explain, just absorb it and keep going, keep being himself, and I was in awe of him for that even when I was too young to say so.”

Ezoic

“How come you never told me about him?” Leo said.

I sat with this question.

“I’ve been asking myself that for about forty minutes,” I said.

“And?”

“Because grief is complicated,” I said. “Because I kept thinking I would find the right moment and the right moment kept not being now. And because I think I was also protecting myself a little bit from the conversation this would require.”

“This conversation,” Leo said.

“Yes,” I said.

“Because you knew it would require talking about tonight,” he said.

“I didn’t know tonight was going to happen,” I said. “But I knew that bringing Danny into your life fully would eventually require talking about the way people respond to people like him, and I knew that conversation would be uncomfortable for both of us.”

He looked at the photographs.

“I didn’t know,” he said. “About Danny.”

“I know,” I said.

“That doesn’t make what I did okay,” he said.

I looked at my son.

He had gotten there himself, which was the thing I had been hoping for and had not known whether to expect.

Ezoic

“No,” I said. “It doesn’t. But it matters that you said it.”

“Would it have been different?” he said. “If I’d known. Would I not have done it?”

This was a better question than I had expected from a fourteen-year-old in the middle of a difficult conversation, the question underneath the surface question, which was whether knowing changes behavior or whether behavior has to change for different reasons.

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